We are currently seeking potential GYHSAC patients to join our trial of the GYHSAC Patient app and the concept of storing your data securely in a Solid Pod. Trial participants will receive a smartphone with an initial data package to support the trial. Our current trial in 2024 seeks your input into the development of this software and your views on how we can better provide culturally safe care to you. To check your eligibility and to register for the trial, all you have to do is contact us via phone or email, or you can meet us in-person at the Gurriny Clinic (working hours only).
Yarrabah Counts!, lead by the Gurriny Yealamucka Health Services Aboriginal Corporation (GYHSAC) in Yarrabah, Far North Queensland, in collaboration with the Yarrabah Leadership Forum (YLF), together with the Software Innovation Institute (SII) at the Australian National University (ANU), is building a first-of-a-kind digital health platform to support integrated health care of patients with diabetes. We are using Solid Pod technologies to enable individual patients to retain the ownership of their own health data, making your health data available to you in ways that have never before been seen.
As a patient you will see many benefits including:
We are currently trialing the developed software with a small group of Indigenous patients in Yarrabah. Patients who participate in the trial will get a free mobile phone with a data package to the value of $50, and pre-installed software.
If you are interested in being part of the trial, please click the button ‘contact us’ (below) to find out more information.
Anyone can install the GYHSAC Patient app on their own Android device by downloading the app file yourself. You can also preview the app on your browser at indi.yarrabah.net. To populate your Solid Pod with data from the Gurriny clinic you will first need to contact the clinic and provide your consent to participate.
Contact UsHere are a few frequenty asked questions about Solid Pods, the technology behind it, and our pilot project. The following is only a very high level perspective. If you wish to learn more about Solid Pods please take a look at the Solid Project Website
Solid (SOcial LInked Data) is a specification that lets individuals and groups store their data securely in decentralised data stores called Pods (Personal Online DataStores). Solid Pods are like secure data vaults where you can store data used by different apps. When data is stored in a Solid Pod, its owners control who else and what other applications can access it.
We collect three types of data for the pilot project: (1) existing diabetes releated health data of a patient is provided by the Gurriny clinic; (2) basic day-to-day health information such as food intake, blood glucose checks, BMI, and smoking status, can be collected by the participant; and (3) personal information such as emergency contact, address, and medicare number, or even a nominee who can support you in using the app.
Your data is stored within your Pod on a Solid server in the cloud. The default server is located within an Australian data centre. All of your health data is encrypted using state-of-the-art standards. This means that even if the server is compromised, no one can access your data without your security key. Not even the computer administrators can access your data. But this means that it is very important that you don't lose your security key because then no one, not even you, can unlock the data you have in your Solid Pod.
Currently, we are developing three prototype Solid Pod based health applications: GYHSAC Patient, GYHSAC Clinic, and GYHSAC Health Worker. These apps target different users of the data. The GYHSAC Patient app is for individuals who are patients at GYHSAC. The GYHSAC Clinic app supports the clini in monitoring and improving the health outcomes for the community. The GYHSAC Health Worker app supports our clinic health professionals in their support of patients, to securely enter, access, interpret, and share sensitive health information with our patients.
The Gurriny Yealamucka Health Services Aboriginal Corporation (GYHSAC) is leading this innovation in data technology with a focus on delivering improved health outcomes and culturally safe care for our Indigenous community.
The project is supported by the Yarrabah Leadership Forum. Funding has been provided by the Federal Department of Health, with contributions from GYHSAC and the Australian National University. The Software Innovation Institute of the ANU has implemented the infrastructure and the software apps.
You can now download the demo version of GYHSAC Patient software and try that out. In the following, we list two methods that you can employ to start using the app depending on your platform (Android (recommended) and Web)
Below we showcase each of the apps we have under development. You can try them out yourself through the web version of the apps: Patient, Clinic, and Health Worker.
Many people from the community have contributed to this project. Our health professionals, data scientists, and software engineers have come together to support the outcomes. Among the many who have been instrumental are the following team members who have supported, directed, lead, and driven the project towards its achievements.
Gurriny Yealamucka Health Services Aboriginal Corporation
Gurriny Yealamucka Health Services Aboriginal Corporation
Gurriny Yealamucka Health Services Aboriginal Corporation
Gurriny Yealamucka Health Services Aboriginal Corporation
Software Innovation Institute, the Australian National University
Software Innovation Institute, the Australian National University
To know more about our project or to get involved in the trial please give us a call or drop us a message. You can also talk to Dr. Jason and Yvette in-person when you visit Gurriny Clinic and ask them about the project.
1 Bukki Rd, Yarrabah QLD 4871, Australia
enquiries@gyhsac.org.au
(07) 4226 4100 (weekdays between 8.00am to 4.30pm)
